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Why We're Building Lumi

Author Michael Caton·Read time 10 min

I stood in her apartment thinking one thing: If anything exists on this planet that would help me navigate this specific situation with my specific child, take my money. All of it. Yesterday. Nothing did.

It Started with Four Postcards

The summer my older son was eight, I took my two boys to Italy — where my wife grew up — for two months while she stayed in New York for work. My in-laws were close — my sister-in-law and brother-in-law literally one and two floors away in the same building. I thought I had support.

Before we left, my son's school had given him one summer assignment: write four postcards to friends back home. Four postcards.

It took us five days.

We did it the right way. I'd been reading the recommended books for over a year at that point. I read Smart but Scattered three times through, with the critical passages highlighted twice over. I had him draft his messages in a scrapbook first. "Just get the ideas down." "Don't worry about spelling." Then we revised together. After three days, all he had to do was copy the final versions onto the actual postcards.

But he couldn't start. He would sit at the table, a postcard in front of him, and freeze. I'd leave to handle something with his little brother, come back thirty minutes later. Not a single word. An hour — nothing.

After hours of this on the fourth day, my frustration imploded, and something in me broke. I walked downstairs to my sister-in-law's apartment in tears. Told her I couldn't do this. That I'd tried everything and nothing was working. She went upstairs to try. She couldn't get through to him either.

I stood in her apartment thinking one thing: If anything on this planet exists to help me navigate this specific situation with my specific child, take my money. All of it. Yesterday.

Nothing did.

How We Got Here

A year and a half before Italy, my son was diagnosed with ADHD along with a writing disorder. He was in first grade.

What came after is a story that millions of families know by heart, even if they've never told it out loud: the scramble. Find a tutor. Find an occupational therapist. Do they accept insurance? How far away? Can the schedule work? My wife quarterbacked all of it. Sourcing providers, coordinating with the school, managing the logistics, all while working full-time. I was there, but mostly in the passenger seat. I showed up. I cheered from the sideline. She carried the weight.

That imbalance is something I'm not proud of. One parent holding all the knowledge, all the coordination, all the operational burden. And it's something I now know is devastatingly common. In most families I've spoken with since, one person is carrying everything. The research, the provider relationships, the daily strategies, and the emotional labor of translating their child to everyone else in the child's life. That person is usually running on empty. And the people around them (partners, extended family, even the professionals they're paying to some extent) often have no idea how to actually help. Not because they don't care. Because they don't have the map.

My in-laws in Italy wanted to help. But when my son's wiring made things really hard, their bandwidth ran out fast, and the burden shifted right back onto my shoulders. For two months, I carried what my wife had been carrying for years. When I got home, I told her: never in our entire relationship had I understood her experience the way I did after that summer. I meant it. It was the hardest and most important thing I've learned as a parent.

We never missed a session with his tutor. We paid out of pocket for occupational therapy. We chose providers based on proximity to the school just to reduce the logistical overhead. For a year and a half, we did everything we were supposed to do.

That's when the postcards came.

What Broke Open

After Italy, I called his tutor. I was furious. We'd been paying a considerable amount every week for eighteen months of sessions we never missed, and I couldn't get my son to copy four sentences onto a postcard.

The first thing she asked me was: Were there lines on the postcards?

There weren't.

She explained that without lines, he had to decide where to start writing. Top of the card? Middle? How much space to leave? That open-ended spatial decision was paralyzing him before he could even begin the writing itself.

I sat on that phone call, outwardly calm and internally seething, thinking: How the hell was I supposed to know that? In what book? In what email? Through what system was that specific insight — for my specific child, in that specific moment — supposed to reach me?

None. That's the problem.

I'd read more books on this subject than most parents will ever read. We'd invested thousands of dollars and hundreds of hours in professional support. And still, in the moment that mattered, I didn't have access to the one piece of guidance that would have actually helped. The knowledge exists. There's just no system designed to deliver it to the right person, at the right moment, for a specific child.

The therapist teaches you a strategy in a calm office on a Tuesday afternoon. The moment you need it is Wednesday at 7:45 am, when the shoes won't go on, and you're already late.

And then I started paying attention to something harder to look at.

I thought about what years of this friction had actually been doing to my son. Not the academic stuff. The other thing. The sheer volume of corrective, redirective, frustrated language he'd been absorbing every single day. From me, from my wife, and eventually from his little brother, who had started talking to him the same way because that's what he heard us doing. You forgot this. You didn't do that. We already told you. Why can't you just...

I thought about how, over time, that outer dialogue becomes a child's inner monologue. And I thought about how much capability, how much potential, how much of a kid's sense of self gets quietly buried under years of hearing about what they got wrong.

My son isn't the one who needed to change. We all did. Every person in his life, his parents, his brother, his teachers, his tutor — all of us needed to learn how to work with his wiring, not against it. That was the clearest thought I'd had since this whole journey began.

This is not a single-player problem. It's a multiplayer problem. And everything available to families is a single-player solution.

The Night It Worked

Five months after Italy, I'd built a rough prototype. It held my son's executive function profile and mine, along with the relevant research from the books I'd been living inside for years. A small system that understood how the two of us were wired.

The night before Valentine's Day, my wife was traveling. My son came to me at 7:30 pm and said, "Daddy, I have to write Valentine's Day cards for my whole class."

Twenty-four cards. The same kid who needed two days to copy four postcards.

I described the situation to the prototype in one sentence. It gave me this four-step plan:

  1. 1
    Let him choose his batch size. He's not going to do twenty-four in a row. Have him decide how many he'll write before a break.
  2. 2
    Write one example card he can reference if he gets stuck. Not a template, just a model.
  3. 3
    Set up three clear zones on the table. Blank cards on the left. Card he's working on in the center, marked with tape. Finished cards on the right.
  4. 4
    Set a timer and make it a game. Can he finish a batch before the timer goes off?

I never would have organized it that way. But the prototype understood that open-ended tasks paralyze him; That externalizing the structure, making the steps visible and physical, removes the cognitive overhead that freezes him.

He wrote twenty-four cards in ninety minutes. For half of that time, he was working independently while I put his little brother to bed.

Same kid. Same diagnosis. Same writing challenges. Completely different outcome — because the guidance was matched to how he was actually wired, not filtered through my assumptions about what should work.

Why This Exists

That prototype was the seed that became Lumi.

What I've learned since, from dozens of family interviews, from thousands of posts in parenting communities, and from our own ongoing journey, is that the parents navigating neurodiversity are not uninformed. They've read the books. They've hired the specialists. They've tried the systems. The problem isn't knowledge. It's that knowing what to do and being able to do it in the moment, under stress, for your specific child, are two completely different things.

And nobody talks about the structural weight. In most families, one parent carries all the knowledge, all the strategy, and all the burden. That person has been the system — for their child, and often for a partner who wants to help but doesn't have the same mental model. There's no backup. When she — and it's often she — is exhausted, the whole thing falls apart. In some families, that asymmetry ends the relationship. In others, it just grinds away the joy until parenting feels like project management and every interaction feels like triage.

Lumi exists for all of them. For the parent who's been carrying everything and needs the load distributed. Not just a better-equipped partner, but something that holds the knowledge so she doesn't have to be the system anymore. For the parent who loves their kid and wants to show up but doesn't know why the same approach that works for their partner falls flat when they try it. For the family that's tried everything and still finds themselves yelling on a Wednesday morning.

We built the thing I was looking for in Italy. Something that already knows your child. Not neurodiversity in general, but your kid, your household, your specific dynamics. Something that meets you in the moment, not after it. That works when you're running on empty. And that grows with your family, because your child is growing. The strategies that work at eight won't work at eleven, and the tools that support them shouldn't be frozen in place either.

We're not building another parenting app. We're not building a checklist or a gamified reward system. We're building the infrastructure that didn't exist when I needed it most — and that hundreds of millions of families around the world need every day.

If This Is Your Family

Lumi is in private beta with a small group of families. If you see yourself in this story — if you've read the books and still find yourself yelling, if you're carrying everything and running out of capacity, if your partner wants to help but doesn't have the map — I want to hear from you.

Join our waitlist. The families who come in early aren't just getting access first. They're shaping what Lumi becomes.

Headshot of Michael Caton, Lumi Co-founder & CEO

Author

Michael Caton

Co-Founder, CEO at Lumi